Tuesday, December 2, 2008

Thankful Memories - Halloween and Thanksgiving with Achromatopsia

Funny moment of the day: At work - after speaking with a representative and asking him to email an invoice to me - instead of saying "thanks" and hanging up - I say "bye-bye!" I said it in mommy-speak, pronouncing the full form of the word. The man was flustered for a moment before responding "ba-bye." Oh, the joys of being a mommy!

I believe that Halloween may turn out to be Emily's favorite holiday, simply because most of the fun happens at night (in the dark when she can see)! We took her trick-or-treating at her cousin's house which is in a wonderful new development with a ton of young families.

Before our diagnosis, I, and some of my friends used to joke around about how Emily might be a vampire, and how of course she would be - being the spawn of an undead herself (me). Well, eerily, Halloween's events had me a little spooked. In the far reaches of my mind I began to wonder if vampires really did exist. I'm reading Stephen King's "Dark Tower" series, which undoubtedly exacerbated these thoughts!

Emily was fascinated with the scarier side of Halloween. Sure, she was having fun getting candy. By the end of the night she was dragging her pumpkin container along the sidewalk because it was so heavy! She stubbornly wouldn't let me or Rich carry it. She not only kept up with the other kids, but at times she was leading the pack! While she seemed to be thrilled with running from house to house she was downright entranced by the "haunted" garages. As the older kids ran and screamed in fright she wanted to go up to and touch the scary characters!

I'm not sure, but I think her sightlessness during the day has enabled her to develop a certain level of fearlessness. I think this fearlessness translates into other aspects of her life when she can see. Or perhaps it's the opposite. Maybe because she can finally see at night, she feels like she all of a sudden has super powers and she'll try anything!

Thanksgiving dinner was interesting at my in-law's house. The conversation hovered around high-blood pressure, colonoscopies and who's getting a physical from what physician's assistant. The icing on the cake was when our nephew (age 7) spoke about what he was thankful for. He said he was thankful for bathrooms, "because without toilets, there would be poop all over the floor!" I am thankful for Emily and the way she is. I'm actually proud of her. I think she's the coolest little chica - who refuses to eat turkey!

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